IAPO A global voice for patients
IAPO is a unique global NGO representing people with chronic illnesses of all nationalities across all disease areas and promoting healthcare around the world that is centred around the needs of the users of the healthcare systems – the patients. The alliance was formed by patients’ organizations themselves in 1999, to facilitate collaboration and to promote a patient-centred healthcare agenda around the world. The need for patients to be represented at the global level as health issues and industries became increasingly multinational was also realized. www.iapo.org.uk
Patient Academy Innovation and Research
The Patient Academy for Innovation and Research (PAIR) is set-up to develop and maintain capacity amongst patients across the globe, to enable them to engage with their health-systems in a more meaningful and strategic manner. Thus, better equipping them to care for themselves and others, by framing their experience with an evidence-based expertise and share with other patients who suffer from the same or similar conditions and diseases. https://www.pairacademy.org/
IAPO Patients for Patient Safety Observatory
In 2021, we are prioritizing patient engagement and co-creation within health systems by establishing the IAPO Patients for Patient Safety Observatory to ensure that cohesive and complementary evidence-based patient safety action is taken by all stakeholders. The IAPO P4PS Observatory will be a critical component in the delivery of safe UHC 2030. https://iapo-p4psobservatory.org
The Group: IAPO, PAIR and IAPO P4PS Observatory
Collectively, the Group has over 400 patients’ organizations as members, all working at the local, national, regional and international levels to represent and support patients, their families and carers. We define a patient as any person with a chronic disease, illness, syndrome, impairment or disability.
The Group’s member organizations will be working in many disease areas, from cancer, heart disease and diabetes to endometriosis, narcolepsy, and depression. They are founded and governed by the patients themselves and are diverse in terms of their capacity, budget and influence. Our members are comprised of community, local, national, regional, and international organizations and include groups such as Alzheimer’s Disease International; the European AIDS Treatment Group; NCD Alliances and the network of patients living with HIV/AIDS and Hep C in Africa.
Working for accessible patient-centred, safe, quality and non-discriminatory healthcare
The Group works towards its vision of patient-centred healthcare in every country by:
The Communications Consultant’s role encompasses coordination and delivery of the Groups traditional and digital communications activities, including the monthly newsletters, and coordination of IAPO’s representation at key World Health Organization (WHO) meetings. The Consultant’s input is critical in our flagship Patient’s Congresses.
Additionally, the Consultant will aggressively build and maintain an expanding media contact list with local, national, and international press and develop relationships with communications officers and counterparts in member organisations and alliance partners. The main responsibilities of the post are detailed below. The postholder is responsible to the CEO of IAPO functionally and operationally to the Managing Director PAIR .
As a small Group, it may require the Consultant and all other staff to be able and willing to support the running of the virtual meetings and to self-administrate. This role may be responsible for managing the work of communications some regional interns and volunteers we may appoint and collaborate other staff where appropriate on communications.
2. Newsletter coordination
3. Coordinating the representation of IAPO at WHO meetings (Now virtual)
4. Contribution to other areas of Group’s work
As a key member of the Group’s teams this role is expected to engage in other projects for the organization as required and within the capacity of the role to do so as well as contribute to the overall smooth running of their communications. This area of work may include:
It is important that the post holder is prepared to work in a relatively small team. S/he should be prepared to contribute to the friendly, positive and mutually supportive atmosphere that has been developed. The post holder is expected to model Group’s values and to take an empowering approach to their work with Group’s members, within the staff team, and with other stakeholders.
The key skills and experience required for this role are outlined below:
E = Essential requirements for the role D = Desirable requirements for the role
Additional useful skills and experience
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