Patient Academy For Innovation And Research
Communications And Policy Consultant
Communications, IT, Media, Knowledge Management, Editor
Application Email :


Job Type

Full Time

Closing Date

Aug 12 2021




IAPO A global voice for patients


IAPO is a unique global NGO representing people with chronic illnesses of all nationalities across all disease areas and promoting healthcare around the world that is centred around the needs of the users of the healthcare systems – the patients. The alliance was formed by patients’ organizations themselves in 1999, to facilitate collaboration and to promote a patient-centred healthcare agenda around the world. The need for patients to be represented at the global level as health issues and industries became increasingly multinational was also realized.


Patient Academy Innovation and Research


The Patient Academy for Innovation and Research (PAIR) is set-up to develop and maintain capacity amongst patients across the globe, to enable them to engage with their health-systems in a more meaningful and strategic manner. Thus, better equipping them to care for themselves and others, by framing their experience with an evidence-based expertise and share with other patients who suffer from the same or similar conditions and diseases.


IAPO Patients for Patient Safety Observatory


In 2021, we are prioritizing patient engagement and co-creation within health systems by establishing the IAPO Patients for Patient Safety Observatory to ensure that cohesive and complementary evidence-based patient safety action is taken by all stakeholders. The IAPO P4PS Observatory will be a critical component in the delivery of safe UHC 2030.


The Group: IAPO, PAIR and IAPO P4PS Observatory


Collectively, the Group has over 400 patients’ organizations as members, all working at the local, national, regional and international levels to represent and support patients, their families and carers. We define a patient as any person with a chronic disease, illness, syndrome, impairment or disability.


The Group’s member organizations will be working in many disease areas, from cancer, heart disease and diabetes to endometriosis, narcolepsy, and depression. They are founded and governed by the patients themselves and are diverse in terms of their capacity, budget and influence. Our members are comprised of community, local, national, regional, and international organizations and include groups such as Alzheimer’s Disease International; the European AIDS Treatment Group; NCD Alliances and the network of patients living with HIV/AIDS and Hep C in Africa.


Working for accessible patient-centred, safe, quality and non-discriminatory healthcare


The Group works towards its vision of patient-centred healthcare in every country by:

  • Realizing active partnerships with patients’ organizations, maximizing their impact through capacity building

  • Advocating internationally with a strong patients’ voice on relevant aspects of healthcare policy, with the aim of influencing international, regional and national health agendas and policies

  • Building cross-sector alliances and working collaboratively with like-minded medical and health professionals, policy makers, academics, researchers and industry representatives

Communications Consultancy 


The Communications Consultant’s role encompasses coordination and delivery of the Groups traditional and digital communications activities, including the monthly newsletters, and coordination of IAPO’s representation at key World Health Organization (WHO) meetings. The Consultant’s input is critical in our flagship Patient’s Congresses. 


Additionally, the Consultant will aggressively build and maintain an expanding media contact list with local, national, and international press and develop relationships with communications officers and counterparts in member organisations and alliance partners. The main responsibilities of the post are detailed below. The postholder is responsible to the CEO of IAPO functionally and operationally to the Managing Director PAIR .


As a small Group, it may require the Consultant and all other staff to be able and willing to support the running of the virtual meetings and to self-administrate. This role may be responsible for managing the work of communications some regional interns and volunteers we may appoint and collaborate other staff where appropriate on communications.


1.    Communications

  • Effectively communicate Group’s policy, research and project work to a wide audience via, press releases, email announcements, newsletter items, IAPO’s website. Social Media and writing articles for internal and external use.

  • Manage the Group’s communications calendar and plan in collaboration with all.

  • Keep the Social Media engagement activity high. Daily posting on Group’s Facebook Twitter and other platforms we adopt.

  • Keep the Group’s websites updated, in conjunction with the CEO IAPO, President IAPO P4PS Observatory and MD PAIR, and Membership Engagement Manager, IAPO and other staff members of the group

  • Monitor and evaluate any new website development.

  • Co-ordinate and develop Group’s presence on relevant social media platforms.

  • With the CEOs, ensure Group’s policy and research work and relevant healthcare issues are communicated effectively to the rest of the Stakeholders.

  • Give presentations on Groups’ work at internal and external events.

  • Draft materials and power point presentations as needed to support colleagues and Group’s Governing Board Members

  • Assist with the drafting of policy interventions, statements and consultation responses as directed by the CEO.

2.    Newsletter coordination

  • Manage, coordinate, edit and send Group’s monthly email newsletter.

  • Source written content from the Group’s members and Membership Manager for the IAPO newsletter

  • Maintain project management template for newsletter.

  • Develop the newsletter to ensure it meets the ongoing needs of the organization.

3.    Coordinating the representation of IAPO at WHO meetings (Now virtual)

  • Coordinate the logistics of IAPO participation at WHO regional meetings and other meetings as necessary.

  • With the CEO, draft policy interventions and support members on policy issues during the meetings

  • Develop briefings for those attending the meetings.

4.    Contribution to other areas of Group’s work


As a key member of the Group’s teams this role is expected to engage in other projects for the organization as required and within the capacity of the role to do so as well as contribute to the overall smooth running of their communications. This area of work may include:

  • Supporting the implementation of IAPO’s and its Groups’ Regional Strategy

  • Providing support to the Group to deliver other projects and events as needed.

Person Specification


It is important that the post holder is prepared to work in a relatively small team. S/he should be prepared to contribute to the friendly, positive and mutually supportive atmosphere that has been developed. The post holder is expected to model Group’s values and to take an empowering approach to their work with Group’s members, within the staff team, and with other stakeholders.




The key skills and experience required for this role are outlined below:

E = Essential requirements for the role     D = Desirable requirements for the role


Core Requirements

  • At least 2 years relevant professional experience gained working in the non for profit sector, or in a similar role (E)

  • The capacity to work in a developing organization with a minimum of supervision (E)

  • A good team worker with a positive, enthusiastic and cheerful attitude (E)

  • Sound IT skills including databases and Microsoft Office Word, Outlook, Excel, Powerpoint, Internet Explorer, design software, virtual meetings etc (E)

  • Good organizational and time management skills, with the ability to work on multiple activities at one time, and meet deadlines (E)


  • Excellent interpersonal skills, friendly, tactful and diplomatic; a good listener (E)

  • Excellent written communication skills, good command of written and spoken English with the ability to provide comprehensive information with clarity and attention to IAPO’s tone and formatting (E)

  • Experience in writing for social Media and other  online communications (E)

  • Clarity of expression in speaking and writing (E)

  • Capable of representing an organization at external events and conferences, giving presentations and networking with others (E)

  • The ability to communicate effectively with a wide range of stakeholders, including with people for whom English is not their first language (E)

  • Some knowledge of, and an interest in, the issues of importance to patients in the global healthcare arena, such as access to treatment, patient information etc and enthusiasm to research and understand such issues in depth (E)

  • Experience of using multiple sources of information and analyzing social and/or scientific research to write communications materials (D)

  • Experience of working in a membership organization (D)

  • Some knowledge of the global healthcare arena and its key players such as the World Health Organization, United Nations, the World Medical Association and others (D)

 Additional useful skills and experience

  • Video Creation and Editing

  • Experience of coordinating or supporting events (D)

  • Experience of managing volunteers, interns or temporary staff (D)

  • Knowledge of/fluency in a second language.

 Further information


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